Whinge

  I was just interviewed as part of a baby psychologist's thesis on "self-care of parents raising a disabled child". It is her objective to specialise in the psychological well being of "disabled families" - this is a phrase I use but there's got to be a better term???  She divulged that there is no specialist care, in general psychology, of people with this particular brand of "fucked", at least none that she has discovered thus far. And if she, who is researching in this area, can't find it, how would a newly born disabled family fare whilst high on denial or so low they can't shit?
  I'm inspired to write a handbook to be available, straight out of the operating theatre, to all parents who've just found out that their new baby is destined for disability. "What to expect when the unexpected happens"? Something to guide people like me through the unguideable. Step one: Find a psychologist that specialises in disabled families, but if indeed you discover that they don't exist, welcome to the world of disability where nothing was built with you in mind.
 This will be a fun project to start while I'm sitting beside the local pool watching my husband climb 50 stairs, 25 times to the top of the hydroslide - my son's favourite thing in his tiny, inaccessible world.