I have a choice to make for my son. Do I:
a) Have a nasal gastric tube inserted - a non-surgical procedure that will feed him food, drugs, fluid, but destroy his enjoyment of eating.
b) Go ahead with a gastrostomy next Monday - surgical under general anaesthetic. It allows feeding, fluid and drugs while he practices eating by mouth and should put the focus on enjoying food rather than making sure he's getting the nutrition he needs. The downside being the wound can get infected and leak, plus, he's one year old and risking another death.
c) Do nothing and hope he starts eating and stops losing weight.
Wouldn't it be nice if we didn't love our children?
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